So it's been a while. A very long while. When I decided to start writing this blog, it was mainly for my own catharsis. A place to put the thoughts I could not put verbal words too. Some place where I could send my thoughts into the universe instead of them festering inside me. Life… Continue reading Self care and…stuff

It's been a while. We've been really busy. Not a lot of spare time to write down the happenings. But tonight as I sat still for a few minutes, I decided to write stuff down and what I decided to write was what I've learned being a parent. Enjoy! 1. Kids are the best. Except… Continue reading Some things I’ve learned being a parent

It's officially summer here in Boston. Sort of. The weather is confused but the kids are officially done with school as of Monday. J has a just a few more days of therapy before that too, ends. We are entering that limbo time, when you're moving and chaos and lawlessness ensue. There is no structure… Continue reading Long breaks and lots of changes

As I sit in the airport on my first solo flight (Orlando back to Boston) in over FIVE years. Yes. You heard that right. I haven't traveled without one or all of my kids in over five years. I'm struck by how much simpler it is. I had truly forgotten what it was like to… Continue reading Let’s travel

People often tell me, "make sure you take time for yourself", "you and your husband should have a date night". I know that when people say these things they mean well. But I don't think anyone truly realizes what it means to take time for yourself or as a couple with 3 kids ages 5,… Continue reading Time

So many times as a parent to extra special little's, you're forced to feel a lot of things without sharing them aloud. Either saying them makes them real or people aren't ready to handle the fears and insecurities of your life so you don't talk about it. The biggest thing is that you're not alone.… Continue reading The things you don’t say out loud

http://www.stateofinelegance.com/?m=1 A great friend of mine asked me if I wanted to help contribute a blog about being a special needs parent. Obviously I agreed. 😄 To the Special Needs Parent: When you're up for the 3rd time in a night, each time with a different child. When they ask you to come to an… Continue reading To the Special Needs Parent

I was asked the other day that if I had known about the mutations, if I would have had children. This is an easy and hard question all rolled into one. I don't spend a lot of time, if any, looking backwards. It serves no purpose and does me no good. Regretting things or wondering… Continue reading A hard question

A is awesome. She is both the most entertaining and infuriating child. In one minute she does something hysterical and the next she's tackling her sister trying to smother her in kisses. A was our first introduction to more "neurotypical behavior". She was curious. Is curious. A is 3 and some change. She's 47lbs and… Continue reading My girl A

J is five. He is 4ft tall and 56 pounds. He is not a small boy. Because of the fragile x, I'm pretty sure he's made of the same stuff the stretch dolls were made of. I have never seen a person who can bend the way he does. The reason is low muscle tone.… Continue reading My boy J